EUROMACS Committee

The aim of the EUROMACS Committee is to implement and maintain the scientific conceptual design and further development of the EUROMACS Registery by safeguarding the rights of the patients. Further, the EUROMACS Committee is responsible for formalizing agreements between EUROMACS and clinical centers as well as with research institutions.

Initially, the Committee has been composed by clinicians with the expected highest number of data records that are transmitted to the registry of the association. According to the statute of EUROMACS, future elections and recalls of members of the board of directors shall take place at the general members meeting.

Committee Chair: Felix Schoenrath

Committee Members

Scientific Advisory Council

The task of the Scientific Advisory Council shall promote and support the interests of the association with their scientific capabilities. In particular, the Scientific Advisory Council shall examine proposals for new research projects which are rejected by the board, as well as to assess the annual report which the board of directors prepares. The Scientific Advisory Council shall inform third party investors, as required by the regulations on grants, about the course of the sponsored projects.

Scientific Advisory Council

Paediatrics Committee